World Sickle Cell Day 2025: Tell it Loud – Share, Celebrate, Advocate
Thursday 19th June 2025 marks World Sickle Cell Day, a global observance dedicated to raising awareness of sickle cell disorder (SCD), which is a serious, inherited blood condition that affects millions of people worldwide.
This year’s theme, “Tell it Loud,” is a powerful call to action: a reminder to amplify the voices of individuals and families affected by SCD, celebrate their resilience, and advocate for better care, access, and understanding.
What is Sickle Cell Disorder?
Sickle cell disorder is a genetic blood condition that causes red blood cells to become rigid and shaped like a crescent or “sickle.” These misshapen cells can block blood flow, leading to episodes of severe pain, organ damage, and other serious complications. In the UK alone, thousands of people live with this lifelong condition, many of whom face challenges in accessing timely diagnosis, effective treatment, and consistent care.
Despite advances in medical science, including gene-editing breakthroughs supported by researchers at King’s College London, there is still a long way to go, especially when it comes to ensuring affordable, accessible treatments for all.
LIBRA’s Role in the Fight Against SCD
At LIBRA Lions, we’re proud to support cutting-edge research and clinical care through our partnership with the Haematology Department at King’s College Hospital. Our funding helps drive innovation, including exciting new work around F cells, which are a type of red blood cell that can naturally reduce the effects of sickle cell disease.
With the help of donors and Lions Clubs across the UK, LIBRA is actively funding research to better understand how these F cells are formed and how they might be stimulated in patients, potentially leading to more accessible, life-changing treatments for people around the world.
Thursday 19th June 2025 marks World Sickle Cell Day, a global observance dedicated to raising awareness of sickle cell disorder (SCD), which is a serious, inherited blood condition that affects millions of people worldwide.
This year’s theme, “Tell it Loud,” is a powerful call to action: a reminder to amplify the voices of individuals and families affected by SCD, celebrate their resilience, and advocate for better care, access, and understanding.
What is Sickle Cell Disorder?
Sickle cell disorder is a genetic blood condition that causes red blood cells to become rigid and shaped like a crescent or “sickle.” These misshapen cells can block blood flow, leading to episodes of severe pain, organ damage, and other serious complications. In the UK alone, thousands of people live with this lifelong condition, many of whom face challenges in accessing timely diagnosis, effective treatment, and consistent care.
Despite advances in medical science, including gene-editing breakthroughs supported by researchers at King’s College London, there is still a long way to go, especially when it comes to ensuring affordable, accessible treatments for all.
LIBRA’s Role in the Fight Against SCD
At LIBRA Lions, we’re proud to support cutting-edge research and clinical care through our partnership with the Haematology Department at King’s College Hospital. Our funding helps drive innovation, including exciting new work around F cells, which are a type of red blood cell that can naturally reduce the effects of sickle cell disease.
With the help of donors and Lions Clubs across the UK, LIBRA is actively funding research to better understand how these F cells are formed and how they might be stimulated in patients, potentially leading to more accessible, life-changing treatments for people around the world.
Tell It Loud – Your Voice Matters
This World Sickle Cell Day, we invite you to stand with us and join the global call to “Tell it Loud.” Whether you’re living with SCD, caring for someone who is, or simply want to support the cause, your voice can make a difference.
✅ Share your story to raise awareness
✅ Celebrate the strength of the sickle cell community
✅ Advocate for change in research, funding, and care
How You Can Help
LIBRA Lions relies on the generosity of individuals, families, and Lions Clubs to continue supporting vital haematology work. On World Sickle Cell Day, consider:
- Making a donation to support research and patient care
- Organising or joining a fundraising event
- Spreading awareness on social media using #TellItLoud and #WorldSickleCellDay
👉 Get involved or donate today: https://libralionscharity.org/ways-to-give
With your help we can give a louder voice to those living with SCD and bring hope & change to those who need it most.
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